AVERY'S JOURNEY

on-line support group for families affected by arthrogryposis. This website has been an amazing support for us during Avery's journey and has allowed us to meet wonderful families. It also allowed us to connect with Avery's current doctors.

bio of Dr. van Bosse, Avery's orthopaedic doctor

Philadelphia Shriner's Hospital is where Avery's orthapaedic doctor, Dr. van Bosse practices.

bio of Dr. Pappas, Avery's geneticist

bio for Dr. Chu, Avery's neurologist

website for the documentary that is being filmed to raise awareness of arthrogryposis which should be available late 2009.

An amazing program! Midwest has helped us with our countless trips to New York and Philly and without this program...I don't know what we would have done

This is a list of doctors by state who are trained in the Ponseti casting method. This is very crucial when dealing with club feet, especially arthrogrypotic clubfeet which are usually on the severe end of the spectrum.

This site has tons of helpful tips and information for anyone facing hip surgery and the dreaded spica cast

We met Rick Guidotti of Positive Exposure at the amc support convention in Ohio. A wonderful man with endless energy who takes beautiful pictures of beautiful children and adults with various genetic conditions.

Link to book that is now available online. An amazing resource for families, therapists, doctors...anyone dealing with arthrogryposis